Welcome to our blog. We are on a journey. This is an unwelcome journey. We are not out of the darkness and into the light yet so we cannot see the benefits of why this all happened. We are hoping someday we will be there, some day soon.For now we just want to have a place to share our journey with others so that maybe something we learn will help them. We also want to update those that are concerned for our mother. Our mother is Bonnie and she has been diagnosed with Guillain-Barre-Syndrome (GBS). We are her daughters, Terry, Donna and Jeanie. This is our journey.

Thursday, January 8, 2009

Jan 7, 2009

They are giving her a higher dose of Nerontin today. They are trying to get her off Dilaudid. Her stomach feels better but her hands and fingers are a little more sensitive than they were yesterday. Her appetite is back. She said the food was so good today; she sent compliments to the chef. The beef was seasoned very nicely and was very tender with yummy mash potatoes and gravy. Her back hurt. I spent some time massaging it. Her legs also got a massage. She has lost some tone on her legs but the muscles are standing by ready to take shape with a little exercise. Bill went with her on her walk this morning. She used the walker two more times latter in the day by herself. She said she felt strong when she went with Bill and felt confident to go on her own the other two times. Bill got the shower aides installed at home today. Getting her ready to go home. When I went in at 5pm he had a clean bag of laundry on his lap that he had got from her this morning, went home and washed it and already bringing it back this afternoon. That is love............Jeanie
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2 comments:

  1. badrud dozaJanuary 8, 2009 at 3:23 AM

    It is nice to see that she is recovering and hope will be recovered fast.
    Thanks for sharing your experience and special thanks for visiting my post and leaving a comment.
    Good luck.

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  2. R. Emmett Hegarty IIJanuary 8, 2009 at 10:36 AM

    GBS is a tricky thing. Not everyone presents the same way. It took three weeks for the doctor's to finally diagnose after weeks of losing mobility, constipation, massive back pain and weakness. I had CAT scans, MRIs, blood test after blood test, x-rays, spinal taps, etc. It was excruciating and no one knew what was happening. I was finally directed to a neurologist who immediately knew what I had without conducting a test, then he did an EMG to confirm and I was sent to the hospital for a treatment of IVIG. By that point I was unable to walk and my breathing was getting more difficult. The IVIG worked pretty quickly and I was out ofthe hospital after a week and on to rehab. I still have lingering effects in my feet and it has been 9 months. The bottom line is it gets better and there is a great support group I belong to with about 10 other survivors of GBS. I highly recommend your mom try one out. There is also an excellent organization http://www.gbs-cidp.org/ Let your mom know it will get better, and if she wants to talk...I am available.

    Rich Hegarty

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