Welcome to our blog. We are on a journey. This is an unwelcome journey. We are not out of the darkness and into the light yet so we cannot see the benefits of why this all happened. We are hoping someday we will be there, some day soon.For now we just want to have a place to share our journey with others so that maybe something we learn will help them. We also want to update those that are concerned for our mother. Our mother is Bonnie and she has been diagnosed with Guillain-Barre-Syndrome (GBS). We are her daughters, Terry, Donna and Jeanie. This is our journey.

Tuesday, January 6, 2009

Dec 29, 2008

Dec. 29th . Well a lot has happened since Sunday. Now they say my mom has a Urinary Tract Infection and can't leave the hospital, not even to the Glen View who has a bed on hold for her. It is still a little crazy but thanks to Pat's daughter, who talked to the Hospital Admin(Terry), and then the director Suzanne Graziano, my mom is being attended to more and today we even got her in a private room. They have not put the pain patch back on but they did increase her Neurontin again. They started her on Leviquin. She had pain in her legs and hands yesterday so that is why they decided to increase it again. Today her hands and feet were better but she was very sleepy and a little loopy. We are still getting some miscommunication and that is driving us crazy. We’re suppose to be meeting with the staff tomorrow at 11:00 to see what they say about her condition. That is why I was surprised when Bill said that the doctor(Dr. Quintero) came in at 6:00 and said that she couldn't leave until at least beginning of next week. Why didn't he wait until the consult tomorrow with the rehab doctor and Neurologist???? Anyway, my sister is staying for another week and we are trying to stay at the hospital most of the day now so it is very tiring. I'm sorry I'm not returning phone calls and will try to do better now that my dad left today. My mom is still not up to visitors. She can't stay awake. My uncle just got here to today and my other uncle is coming on Thursday so they will go see her then. Keep the Prayers coming because my mom can definitely use them. She has been going through this for a month now. Dr. Roy came in to check mom for her breathing and told her that when she got out she should be evaluated for Sleep Apnea. He said they would check her over night for her oxygen level. We never did hear how that came out.

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