Welcome to our blog. We are on a journey. This is an unwelcome journey. We are not out of the darkness and into the light yet so we cannot see the benefits of why this all happened. We are hoping someday we will be there, some day soon.For now we just want to have a place to share our journey with others so that maybe something we learn will help them. We also want to update those that are concerned for our mother. Our mother is Bonnie and she has been diagnosed with Guillain-Barre-Syndrome (GBS). We are her daughters, Terry, Donna and Jeanie. This is our journey.

Tuesday, January 6, 2009

Jan 2, 2009

Jan. 2nd. Mom is very sick and now has diarrhea. We asked the nurse to call the doctor to see what was wrong. The doctor(Dr. Bendeck) was on the floor and didn’t bother to see my mom. The nurse paged her and she finally came up and said no one had told her my mom was sick. We reminded her about the nurse calling the day before about the antibiotic and she said “Oh right”. She said that she wanted to draw some blood and do a Heart Ultrasound and would change her antibiotic after consulting with Dr. Brown. Dr. Kelley came in and harassed my mom about not doing PT. What a joke. Like she wants to do leg lifts when she feels like vomiting. They did a stool culture but the nurses were arguing about it so I’m not sure it got done right. This is the 15th day and my mom has not had the same day nurse. No continuity whatsoever. Dr. Wiesenthaller(gastroenterologist) came in the said that the antibiotic could make her nauseous and then he got a call to O. R. and never came back. They gave my mom Ampicillin around 7:00pm. Dr. Baker came in and said that he would stop the Neurontin and just use Hydrocodone for pain control and order Lidocaine cream that she could apply 4 times a day. I asked about suddenly stopping the Neuronton because of side effects and he said it was ok that that was just for people who had been on it for a long time. I also asked about using Tens unit and Capsacian cream. He said that she might have this pain for some time and it may get worse before it gets better. My mom is very atypical because it’s more sensory than motor. I also left a message with Peg for Terry the Hospital Admin and she never called me back.......Donna

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