Welcome to our blog. We are on a journey. This is an unwelcome journey. We are not out of the darkness and into the light yet so we cannot see the benefits of why this all happened. We are hoping someday we will be there, some day soon.For now we just want to have a place to share our journey with others so that maybe something we learn will help them. We also want to update those that are concerned for our mother. Our mother is Bonnie and she has been diagnosed with Guillain-Barre-Syndrome (GBS). We are her daughters, Terry, Donna and Jeanie. This is our journey.

Tuesday, January 6, 2009

Jan 5, 2009

Jan. 5. Well my mom did not get out of the hospital today. They will be moving her back to North Collier tomorrow. She has had nausea for 6 days and diarrhea for two days. She has eaten very little to none. Even smells bother her. Then last night she had severe abdominal pain again just like when she was admitted. They did an Ultrasound of her Abdomen which was ok and so they started her back on the Neurontin again. We had tried taking her off a lot of the medicines because she couldn't function. Plus they almost caused her to Overdose last week. She can't go into Glen View because of the pic line in her arm and she needs that for the Dilaudid that she is getting for the pain. I think at this point if they can get her stomach under control then she can go home. They also gave her protonics and tums. The Neurologist said that in his 15 years of practice he has seen 100 cases of GBS and none of them have had stomach problems. He is sure that that is what it is. I researched the whole thing on line last night for about 2 hours so I asked him a lot of questions today. He was pleased with the strength and movement in her hands and feet. She also got her knee reflexes back. She never lost her ankle reflexes which he said every one of his cases they had lost that reflex. We really like him but he said it will be a longggggggg process for her to get well. They also tried to move someone in her room again and we explained that she was in a private room and they said again that she wasn’t paying for it and we told them about the situation and they said they would go look at the chart. Why wasn’t that done ahead of time instead of coming in and harassing my mom. We also told them that we would gladly pay so that she wouldn’t be exposed to all kinds of diseases. What a nightmare. They told us they had to get her off the rehab floor......Donna

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